All Donations, Funds raised will benefit not only our foundation but our warrior ambassador families. These families are chosen by us and will be supported over the course of a year to help alleviate some of the financial struggles they face in the daily living and management of epilepsy. The Epilepsy Warriors Foundation is a federally recognized 501c3 non-profit. All donations are 100% tax-deductible, and we thank you for supporting our children and families.

Guest Book2016-04-12T21:01:27+00:00

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  1. Christine Rienzie February 1, 2011 at 11:33 pm - Reply

    Wonderful Website! A million thank yous to you!

  2. We are so PROUD of you! This is the best ever! YOU ROCK and we LOVE YOU SO MUCH! You have made a BIG Difference already!

  3. Julia Queen February 4, 2011 at 11:31 pm - Reply

    Susan, this is a fantastic website. I love the layout and the information provided. You have done a fabulous job, keep up the great work in promoting Epilepsy awareness.

  4. Wendy Flammia February 4, 2011 at 11:31 pm - Reply

    Susan, Keep up the amazing work! Thanks to people like you together we will find a cure! Lots of hugs for all the hard work you put into Epilepsy every day! Love, Gia and Wendy

  5. Gio's Mom February 4, 2011 at 11:31 pm - Reply

    Susan: What you have done here is nothing short of remarkable! Keep blazing that trail – you are a true inspiration!

  6. Heather February 4, 2011 at 11:32 pm - Reply

    What a great website and a FANTASTIC resource. Keep fighting the good fight; you are doing amazing work!!! Hugs to you and your team!

  7. Danielle M. Rocheford February 4, 2011 at 11:32 pm - Reply

    A great website Susan with a ton of information! Thank you for including my book in your library. We’re both working toward a similar goal of bringing more awareness to epilepsy so if I can be of any help, please don’t hesitate to ask. As I would say in my mantra “With a positive attitude anything is possible!!”

  8. Stacy Fulkerson February 4, 2011 at 11:32 pm - Reply

    This is a beautiful site, very informative. I love this page so much

  9. kathy canfield February 4, 2011 at 11:33 pm - Reply

    Thank God there are people like you Susan who take action where it is so greatly needed. God bless you as you move forward on this new journey!

  10. Stacy Stewart February 4, 2011 at 11:33 pm - Reply

    Susan, I love the website. It is very informative and resourceful!! Thank you so much! The only way to find a cure for Epilepsy is through awareness and education and you are doing so much. Riley and Camryn’s epilepsy is so different and these resources have helped so much!!

  11. Roxanne Davenport February 11, 2011 at 12:22 pm - Reply

    Hey Susan,
    Looks great! Thanks for all the work you do. This is what we need to bring attention to epilepsy to one day find a cure.

  12. Mary Anne Meskis February 11, 2011 at 1:37 pm - Reply

    The website looks just incredible – I know it was quite a bit of work, but well worth it! It will be so helpful for so many.

  13. Donna Martin February 11, 2011 at 7:27 pm - Reply

    Your Comments

    This is a Fantastic Website. You are doing so much for our Children and everyone with this…You and your team are making doing Great things. …Thank you so much…..

  14. Jennifer Tischer February 13, 2011 at 11:53 pm - Reply

    Your Comments
    The site is great. Such a great resource for families affected by epilepsy!

  15. David Julian February 18, 2011 at 5:41 pm - Reply

    Congratulations! I really like the new design and layout of the website. You have done a great job and poured your heart and soul into the foundation Susan. I’m proud to call you my friend and fellow advocate, you are a wonderful person 🙂

  16. Holly Rickman March 16, 2011 at 11:51 am - Reply

    What a fantastic site! It will be a great resource and blessing to many families to come! My best to you in this.

  17. TA April 24, 2011 at 11:50 pm - Reply

    Glad you found your calling Susan! I’m sure many will benefit.

  18. Wendy Flammia May 3, 2011 at 9:53 am - Reply

    Thank you for sharing Gia’s story !
    Keep up the great work!!!

  19. Your making a big impact and difference for all our kids and family members with Epilepsy and I am so very proud of you. You never give up and you fight all the time for what’s right and to rid what is wrong. Your a great role model for my Kids and I love you…

  20. Matt & Mason Millsaps June 7, 2011 at 9:51 am - Reply

    Your AMAZING! I appreciate every thing you are doing to raise awareness about epilepsy! Truly amazing! Thank you so much, your website looks awesome. Your awesome Susan!

  21. Alison Pinsley July 25, 2011 at 9:06 pm - Reply

    Wonderful website Susan. Thank you for doing so much to raise awareness of epilepsy and it’s affects on those who suffer from it.

  22. Nick Vigil July 29, 2011 at 12:43 am - Reply

    Thanks for the insight, words, education. The site looks absolutely awe inspiring. Your reply and post to the view Celeb, was both thought provoking and synopsis of seizures. Even thou every American knows about it from Ceaser of Rome. I believe he suffered from fits, which was read about in a play …. the ides of march. I trust this will be a longtime reference that will not only be of help for my family members but others in our military. Nick Retired CWO3 USArmy 70-92.

  23. Lauren McTIgue August 9, 2011 at 12:34 pm - Reply

    I’m so proud of you Susan!!! It’s seems like just yesterday we were two facebook buddies who hated epilepsy and did everything we could to spread awareness & concern and now I’m with the EFGC and you have Epilepsy Warriors!!!! We are both in the right places! 🙂 The site is just great! You are truly making a HUGE difference in the world of epilepsy! xoxoxo!

  24. Susan August 9, 2011 at 1:20 pm - Reply

    Thank you so very much everyone for the kind words and comments. I am so truly blessed to be surrounded by such loving and supportive family and friends. We WILL WIN THIS FIGHT! 🙂

  25. Candace September 8, 2011 at 12:11 pm - Reply

    The website looks great Sue! I am honored and excited to work with The Epilepsy Warriors Foundation! We will plan a great launch party for this great cause!!

  26. Susan September 9, 2011 at 10:05 am - Reply

    Thank you Candace, I am honored and excited to have you be a part of us and am so looking forward to your planning many great things for our Foundation.

  27. ericabtOH123 September 13, 2011 at 6:22 pm - Reply

    This Website Is So Uplifting. I Enjoy Seeing the Updates and Reading Passages. Thanks For All You Do.

    • Susan September 13, 2011 at 9:10 pm - Reply

      Erica, Thank you so much for those kind words. I would love and be honored to share your website link to mine, I just took a look its amazing and your Cousin Jazlyn is one beautiful and special little girl to have such a beautiful and loving Cousin. If your on Facebook would love to have you join our foundations facebook group page and feel free to request me as a friend!

  28. Erica September 13, 2011 at 9:52 pm - Reply

    Susan, thanks to you, my goal is somewhat easier to reach, getting people aware of this disease is what builds a foundation to a cure. I believe your website is definitely user-friendly and details the problem and shows a solution. As for my website, I appreciate your gratitude and comments as well to my effort, for my thanks, I will show more existance of your site onto mine, and I would love to join on Facebook! Thank you for the offers and thank you for helping to save a life.

    • Susan September 13, 2011 at 11:25 pm - Reply

      Thanks so much Erica, we would love to Welcome you on our facebook group page so go directly to Facebook and look for our name and logo. Thank you again! Praying for your Cousin Jazlyn!

  29. ericabtOH123 September 14, 2011 at 7:22 am - Reply

    I Appreciate That So Much, You are a wonderful person, I hope you know that. You’ve Impacted so many lives. Again, Thank you. I Found your group. 🙂

  30. William E. Lievens, M.D. August 31, 2013 at 3:44 am - Reply

    Susan, thank you for having such a useful website and being a great resource for so many patients and families!

  31. Vincent Dederer October 6, 2013 at 6:59 pm - Reply

    I have deeply enjoyed the ability to gain and hopefully to give encouragement to others who endure Epilepsy. I also have Spastic Cerebral Palsy which I don’t address very often.
    I really enjoy being able to share the “Wallpaper” I share with the desire to be of some kind of visual encouragement or joy with others.
    Thank you Susan and the others here for the encouragement which is shared.

  32. Bethany December 16, 2013 at 8:20 pm - Reply

    Wonderful website for the research paper I’m doing! As an epileptic myself, this opened up many new doors of information! Thank you greatly!

  33. Ashlyn Krutz January 23, 2014 at 5:23 pm - Reply

    This is awesome what you are doing. I am a help with Epilepsy Nebraska I am also a teen this is really cool to see what your doing. Hope all is going good in FL.

  34. Lisa Terrill May 21, 2014 at 10:03 pm - Reply

    I have two sons with epilepsy. My oldest, 27, was diagnosed 10 years ago and my youngest, 21, was just diagnosed three weeks ago. I live on the central west coast of Florida. I’m having difficulty finding support for parents of adult children with epilepsy in the Tampa/St. Petersburg area. It’s a whole different game when your child with epilepsy becomes an adult with epilepsy. When they want to live on their own, issues with not being allowed to drive, getting their first job, social settings, dating, side effects of meds, etc…. The list goes on and on. While I feel I’m educated on some issues related to epilepsy, there’s so much more to learn and to share with other parents. Also, the public in general needs educated. I’ve been told so many times, ” So he has epilepsy. There’s medication for that. If he just takes the meds, then he’s ok, right?” Some even believe it’s a mental health issue or leads to mental illness. Is there any support in my area from the Epilepsy Warriors? If not, can we establish some?

    • Susan May 21, 2014 at 11:15 pm - Reply

      Hi Lisa,

      I don’t have a support group in your area but their is one for adults out of Tampa General they meet on a Wednesday evening once a month! Here is the information for you!

      Epilepsy Support Group

      This group provides a forum for people who have epilepsy and their families while also providing an opportunity to learn more about epilepsy, the challenges of living with epilepsy and available treatment options.

      Dates: Meets the 3rd Wednesday of each month
      Time: 6:00 p.m. – 7:30 p.m.
      Location: For room location, please contact (813) 844-4675
      Contact: Valerie Kelley, (813) 844-4675;

  35. Garnet September 25, 2014 at 12:03 am - Reply

    Hello i live in Alberta Canada . I live with epilepsy.. I don’t let it get me down ..
    i hold a job that get’s me threw the year. i don’t have many friends, that is o.k
    rock”en” roll live your life GOOD

  36. Ann Marie Bezuyen November 17, 2014 at 4:44 pm - Reply

    Hello! Just saw your wonderful video and epilepsy month message. Congratulations on getting the word out!

    Best…Ann Marie

  37. Nicole Gaffney November 8, 2015 at 2:55 pm - Reply

    This website is a wealth of information. I am a parent of a child just diagnosed in July

    • Susan November 8, 2015 at 3:10 pm - Reply

      Hi Nicole, Connect with us on Facebook and let us know if we can help in anyway!

  38. Margie December 1, 2015 at 2:55 pm - Reply

    On May 30, 2015 I became the mother of an angel taken by SUDEP. I am looking for a place to turn my grief into something positive, and came across your website. I live in Southwest Florida, and am more than willing to help spread the word. I was not even aware of SUDEP until AFTER my son passed. A special thanks to all the warriors out there, and my heart goes out to all who are living with epilepsy.

  39. Theresa July 12, 2016 at 2:19 am - Reply

    My Warrior was taken home in July of 2014. He was my son, 25 years old and had Epilepsy for more than a decade due to head trauma in a car accident. I just wanted to thank you for the work that you are doing. I live in California and know that even in the most populated of cities there is not enough information, awareness and support for our Warriors. May Gods’ Grace be with you as you continue this very important work.

  40. Mary Ann Constantinou September 19, 2016 at 11:56 pm - Reply

    I have a friend who has a daughter recently diagnosed with epilepsy at age 15. We live in Houston and she is struggling with this emotionally. Do you know of any parent support groups in Houston that my friend can attend to help her deal with this? Thank you for any help you can offer.

  41. Cathy Hoyda November 26, 2016 at 6:29 pm - Reply

    Sorry, just remembered…
    Please have families register (?) with REN, Rare Epilepsy Network.
    They are gathering data on rare seizures to be able to attract more research funding.
    Thank you.
    Cathy Hoyda

  42. T. A. Niles April 22, 2017 at 12:02 pm - Reply

    Gotta love the efforts of people trying to do good in this world! Thanks for your efforts Susan!

  43. Michael Weinberger April 29, 2017 at 1:03 pm - Reply

    Thank you for raising awareness of Epilepsy. My son, Zachary, suffers from a very rare Epilepsy called Lafora Disease. To date, only about 200 cases have been diagnosed. He suffers physically and mentally everyday with myoclonic seizures as well as Grand Mal, absence and drop seizures. It’s agonizing watching your child suffer and though we have an amazing support system that is walking this journey with us, we are in the midst of a crisis here in Southern Maine.
    Zack requires full time nursing care as he cannot walk, is non verbal and needs help with everything from feeding to toileting. The crisis is there is little to no in-home nursing in this area and we are left to care for Zack without any help from the nursing community since January.His mom and I are exhausted and now must also pick up the battle of finding nursing care.
    As a parent, there’s nothing you wouldn’t do for your children but this has been taking a severe toll on myself and my family. Pray that we can find help soon.
    Thanks for all you do.

  44. Tricia Proefrock May 8, 2017 at 2:54 am - Reply

    Awesome Susan…. saving it on Pinterest. Thank you for all you do, keep up the great work!! 💜💜

  45. Rebecca June 5, 2017 at 5:48 pm - Reply

    Hi Susan,

    My name is Rebecca and I am with Echo Project Management Group, Inc. We are boutique style medical project coordinators and we are here to offer a voice to those that suffer from rare diseases such as Epilepsy.

    We have an upcoming study for pediatric patient’s and caregivers of those diagnosed with Partial Onset Seizures. We would love to pass along information regarding this study to you to pass along to your members upon your approval.

    We also offer a support group referral incentive program that is based upon the referrals that complete the study.

    We look forward to working with you and your group so that together we can Echo their voices.

    Thank you!

  46. Richard swasey June 17, 2017 at 3:16 am - Reply

    Good eving. My name is. Richard eugene swasey i have had epilepsy for 50 years
    Started as small boy. Wearing a hockey
    Helmet hitting the cement. 30 seizures
    In minute. I have pet mal .clonic generalized took 40 AED epilepsy meds.
    Vns in chest. In 2016 i had seizure fracture
    Right ankle had 7 med pins metal plate.
    Been phx shelter no family support.
    Divorced.i do not know what would classify a warrior of epilepsy is.
    But i do this on my own .

    My address 4900 south 4135 west
    Kearns utah.

    Richard Swasey.
    The soul is the strongest..

  47. jasmine August 30, 2017 at 5:35 am - Reply

    Thank you for the hard work and dedication. Keep it up and stay safe!

  48. Levi November 13, 2017 at 5:33 pm - Reply

    My names levi and im 18 i wanted to Thank you guys this website it has helped me and my fiancee start to figure out and understand my epilepsy a lot better since I have limbic, posttraumatic and autonomic epilepsy and LGS from brain damage I got after riding from a heat stroke when I was 5. It was hard I didn’t know I had epilepsy for 4 years because the doctors would use me as a test dummy for medications and they blamed the medications .then I finally went to a neurological specialist and slowly but surely I’m figure out my problems and trying to conquer them as much as possible and This website has made it easier for me to deal with my problems and my fiancee says she handles it a lot better know you guys really help describe the way I’m feeling a lot of the time . I have much love and respect for you guys

  49. Jackie Anselmo November 22, 2017 at 5:18 am - Reply

    Aicardi syndrome is believed to be an unknown random mutation. Not inherited. Genetic only in that it is believed to be somewhere within the X chromosome. The source of the mutation is unknown as well. It is found primarily in females and only males with XXY (Klienfellers syndrome) survive gestation.

  50. Donna Marie Jones December 1, 2017 at 7:23 am - Reply

    Fantastic website. Really happy to have found you!

  51. Rachel Workman December 16, 2017 at 5:17 am - Reply

    This will help me as I just started the tough journey of my 4 month old on seizure meds:( I also have epilepsy but haven’t had seizures in years:) it’s so much tougher to be a mom in these shoes than the one in them:( praying for the seizures to leave entirely:)

  52. Brie Terpening April 13, 2018 at 4:25 am - Reply

    I’ve had seizures for 34 years, I’m 38. Just recently my seizures have decided to change around on me. After so many meds, a VNS implant, and RNS implant this page is nice to see. There are more people out there with epilepsy out there than is realized. Pages like this really help.

  53. Ruth Ann Hess April 13, 2018 at 4:45 pm - Reply

    We are the exclusive North American distributor for KayserBetten US. We offer enclosed beds for children and adults who require boundaries due to seizures and a risk for falls and injuries. Our beds offer features that many families are looking for when selecting an enclosed bed for their loved one with Epilepsy. Please visit our web page at: or contact me for information. I would love to share our information with families who need an enclosed bed. I look forward to hearing from you.

    Ruth Ann Hess
    Sales Director
    1-800-574-7880 ext. 308

  54. Toni A Clark April 14, 2018 at 6:19 am - Reply

    My name is Toni Clark I have a 8 year old daughter who was 100% fine until father day 2016. She had a brain biopsy and her left side of her body is weak. She has over 300 seizures a day. I had to stop work to care for her. The doctor said she has focal cortal dysplasia. But other people don’t because she is getting weak. I have a 12 year old and a 1 one year old. I’m scared to loose my daughter could some one please help. I have nothing left. I’m about to loose my house and car. Please help.
    Toni Clark

    • Susan April 19, 2018 at 3:04 pm - Reply

      Hi Toni,

      I have reached out to the Epilepsy Foundation of Texas and asked them to reach out to you. Please let me know if you hear from them.

  55. Roy Suchogorski April 25, 2018 at 4:18 pm - Reply

    I thought you would be interested in this breakthrough for PTSD, Seizures, Cancer, Arthritis sufferers. It can also be used to raise money for your group. I watched a you tube video of a child who was having 600 seizures a day to going 2 months without an episode. . The non-THC CBD Cannabidiol Oil is the secret to a new balance in the body’s entire system. This Cannabidiol Oil is 100% legal in the USA and Canada. Oh. I almost forgot Here’s the biology behind the CBD oil a 20 minute video .

  56. emile June 16, 2018 at 8:09 pm - Reply

    My son had suffered from myoclonic seizure for over a year, uncontrollably with meds. When he has one it starts where he rolls his eyes back or his eyes are staring off to nowhere, seeing he arms jerk every single night His breathing gets very shallow and his heart rate speeds up, now his not sleeping. I don’t think there’s any changing he started experiencing one horrible serious side effect of the medicine. I could not get an appointment with a neurologist for 5 weeks. I was filled with worry. Thank God for a wonderful doctor, i read a testimonial of someone on a website her daughter was cure from seizure using herbal medicine. I called the number that was retain at the website, i explain to doctor Lawson about my son symptom and I ordered his medicine. my son used the medicine for month now, his health has change the meds worked without any trace of side effects. For over 1 year now seizure free if you don’t have this herbal product it is available. It works, wonderfully. Call him at (979) 475-5130 or email dr.lawson52@ gmail I’m so grateful that he was able to SURVIVE it.

  57. Brooke Epps August 21, 2018 at 4:51 pm - Reply

    This is a great websight full of very helpful info. for parents and adults with Epilepsy. I volunteer with a group of adults with Epilepsy and will direct them to this sight just for all the helppful information that is so easy to find. Thanks!

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