All Donations, Funds raised will benefit not only our foundation but our warrior ambassador families. These families are chosen by us and will be supported over the course of a year to help alleviate some of the financial struggles they face in the daily living and management of epilepsy. The Epilepsy Warriors Foundation is a federally recognized 501c3 non-profit. All donations are 100% tax-deductible, and we thank you for supporting our children and families.

Executive & Governing Board 2017-03-07T15:35:57+00:00

Susan-BioSusan J. Noble – Founder/President

As President and Founder of the Epilepsy Warriors, I, Susan Noble, am striving to reach as many people within all communities to help educate and bring an end to the stigma of epilepsy. It takes teamwork. It involves supporting each other in all efforts. It means showing the world that epilepsy is so worth researching, fighting for, and funding. We are all fighting for a CURE for our children and those “Living with Epilepsy” every day.

We are a new foundation one with a passionate vision. This vision will light our path, and guide us towards our goals of “enlightening, empowering and curing. 100% of the Funds raised by our foundation will go to those families in the communities that are in need of our help to assist them with the daily living expenses and management of this disease.

The goal is to provide a level of support and services to family’s communities at large.

Bisa PetersonBisa Peterson

Bisa Peterson is the founder and Chief Executive Officer of Microton Incorporated. She is a native of Eufaula, Alabama. Born March 22, 1993. She was quite an exceptional child, with knowledge in multiple forms of code and software by age eight and versed in three languages at the age of 12. Ms. Peterson studied diligently throughout her young years immersing herself in scientific research. She is a very diverse person avid about foreign cultures, history, and operatic music. Ms. Peterson is a very learned person due to exceptional teachers, her science teacher Mrs. Manderson in elementary school. Her history professor Mr. Culberson in middle-school. As well as her Spanish tutor who wishes to remain (anonymous). After the 7th grade, Bisa became homeschooled through the Community Fellowship School in Opelika, AL. By Ms. Evergreen Freeman and her mother Mrs. Delores Peterson who laid down the path of her foundation in academia.

In the summer of 2009 she began researching a way to bring everything learned over the course of her life into a coalition for the betterment and innovation of the scientific community. After two years of arduous work she graduated with a 4.9 GPA at seventeen, her homeschool proposed that she was ready for college. It was from this point on that Ms., Peterson began to pile her achievements in hopes of making a good impression on superiors. Thus proving that in spite of her age, she was ready to start work and college. Bisa would go on to major in physics and mechanical engineering at the University of Southern Mississippi.

After an email to a company (Noetic Technologies). Bisa was contracted to design thirty-six technologies for the polymer science company. She moved to Hattiesburg, Mississippi in hopes to start her technology company once she completed the work for Noetic Technologies. The partnership turned out to be detrimental, due to Noetic Technologies insisting on giving credit to people who never taught Bisa. As well as, the diagnosis of epilepsy and an unfortunate fall that caused memory loss up to 45%. During this time, Bisa was designing the first curved bullet, based on an idea at the age of 12.

However, for a few weeks everything went well, and she had the opportunity to research alongside a leading scientist at the NASA. She returned to Southern Mississippi the following year to continue her studies, Ms. Peterson also worked under the guidance of the Chairman of the Physics Department Khin Maung to help her graduate early and design technology in her name. She continued her work at NASA as an intern and relinquished all ties with Noetic Technologies.

Ms. Peterson designed several defense concept technologies between the years 2012-2013 at the University. Her friend Walter Eskridge, created her technology on AutoCAD and she worked with Lawrence Mack to establish a private club on campus to brainstorm innovative ideas to help solve world problems. During her time in Mississippi, she worked with Sgt. Hoover to develop her technology for defense purposes. Shortly, afterwards she was injured and began to suffer from severe seizures, partial paralysis, and migraines. Bisa battled the very worse of this disease, and she made a full recovery finally in 2016. With the help of herbal teas, Vimpat, and rapid exercise as well as a healthy diet and support system. Additionally, she worked with a Master-Guns man to begin building the weapons for defense applications. Year 2014 shw designed her curve bullet and shortly after she started working on a sonic device for the USDA and Jager Pro to eradicate feral hogs.

After, a disagreement with a private company, Bisa decided to start a business. Ms. Peterson decided to seek advisement from startup incubator (Techstars) in London and the Roundhouse in Opelika, AL. Now she has a startup with her co-founder, and they are leading a diverse team and she is determined to make her mark in the world, Bisa focused on solving problems for the military sector, but she realized the actual problems were in everyday life. She thought of famine, disease, crop growth, polluted waters, and illnesses that plagued the world. For her, that was a realization, it is better to solve problems to avoid conflict then to add to conflict by making things to cause even greater harm to the world. For these reasons she has chosen to start a diverse and innovative biotechnology focused company.

“I gave myself a new mission in life, to prove that the impossible can be made possible with determination and support.”-Bisa Peterson

bisa@microtron-3d.com

Samuel Syracuse

I was diagnosed with symptomatic partial epilepsy at the age of 3.  Symptomatic Partial Epilepsy: The term “symptomatic epilepsy” refers to epilepsy that is a symptom of an underlying problem, such as an injury, an infection, a congenital brain malformation, a tumor, or a metabolic disorder.

sam

Having epilepsy has limited my life in a few ways it makes me worried about being far away from my family or traveling. It really limits my independence and I feel like I always need an emergency contact nearby. It often affects my personal life as well including work and recreational activities.

I’m looking forward to serving on the board of the Epilepsy Warriors Foundation doing my part to help spread the awareness, educate, fundraise to help our Ambassador families but also to get more young people involved in helping others. I hope to be able to reach out to other young men or women like myself that are also traveling this same journey.

I would like to see alternative treatment options/non-traditional treatments advocated more than they are but most importantly I want to see a general increase in the awareness and knowledge of epilepsy discussed and brought out into the forefront. Everyone should be taught what to do in an emergency if you see someone having a seizure, everyone should be aware of what to look for, what to do and not do. Know the symptoms.

We need better healthcare coverage for epilepsy patients and their families as the cost of private healthcare is astronomical. We need good coverage for those of us that have pre-existing conditions.

I want to see changes made in the social stigmatization associated with epilepsy. An increase in awareness and the knowledge of the neurological disorder may do just that. Epilepsy is talked about but not enough we don’t see very many public service announcements about epilepsy like there is for so many other diseases and chronic health issues. For we may have epilepsy but it never defines who we are.

If you would like to help any of the Ambassador Warrior families chosen through the Epilepsy Warriors Foundations Ambassador Program you can do so through this website. Thank you for your support, understanding towards all of us.

Georgean Hillyer

Georgean Hillyer, Is a wife to Patrick Hillyer and the mother of 6 beautiful children, Christopher, Joseph, Jessica, Aaliyah, Joshua, and Alexandrea. Their lives were changed forever when their fourth child had her first seizure at three months old.

She was in and out of the hospital every month; no one knew what exactly was causing her seizures and the doctors ordered many tests and tried many medicines. Aaliyah has as sequence alteration in the ATP1A2 gene. This gene encodes a subunit of the sodium/potassium ATPase channel, a channel that coordinates influx and efflux of sodium and potassium ions for an individual neuron, making it more or less capable of firing. A mutation in this gene is best known for causing familial hemiplegic migraine type 2. However, there have also been reports of children with severe epilepsy due to mutations in this gene.

At 18 months old she was in the hospital for a month and a half. She was put in a drug Induced coma to stop seizure activity when she finally awoke; they received news that paralysis affected her left side. Being told their Daughter would never walk, talk, or frankly do anything was news that is so difficult to hear

Aaliyah entered the early intervention program, and she had developmental, speech, occupational, and physical therapy. As a family, we were not going to give up on her, and she was very determined, she was sitting up, crawling, and eating in a few months and was walking and saying at least ten words by the time she was three. Her determination also played an important role in my life. I decided to go back to school and become an Illinois credentialed developmental therapist. I needed to know how to help her and what her rights were, and I felt I needed to help d guide other parents and their families.

Unfortunately, Aaliyah had another episode in July of 2011, she again was put in a drug-induced coma and woke up paralyzed on the right side. So, we had to start over with all therapies to get her to walk, talk, and eat again. She is still very determined, but it has been hard. We have had to fight to keep her therapies; we have to prove that she is still improving.

Our insurance doesn’t believe nutrition is essential. As part of the Epilepsy Warriors Foundations board, It is my goal to help as many families as I can, I want them to know they are their child’s best advocate, and they are not alone. I want to inform corporations, insurance companies, and others that there is so much more to epilepsy than just a seizure or two it can change a family’s life more than they can imagine. I look forward to serving and putting the interests of our kids first and spreading awareness about how important this cause is.

Patrick Hillyer

Patrick Hillyer, devoted husband to Georgean, and father of six: Christopher, Joseph, Jessica, Aaliyah, Joshua, and Alexandrea. I have learned over the years that we are all different. With six children, I can safely say that no two are the same. I love them all equally but uniquely. I am a network engineer by profession, so I am very technical in nature.

When Aaliyah, diagnosed with epilepsy(eventually) my journey to understand it began. Before that, I was aware of epilepsy but had no idea of its width and depth. The challenges of living with a medical condition, especially when it is severe, is often difficult or impossible for people who haven’t lived it to grasp. It is always there twenty-four hours a day, every day.

It influences, and often alters, many of the choices made in everyday life. Even if people think they understand, usually they are mistaken if they haven’t walked it. Many children with epilepsy continue to battle it throughout their adult lives, and far too many never make it to adulthood at all.

Having Aaliyah with an extremely rare form of epilepsy, one that doesn’t follow the “norms” has heightened my sensitivity to this. As we continue on our journey through life meeting other people and families, I can often relate; but, never presume to understand their circumstances. Even though the intensities and specifics vary greatly for all, there are some struggles that are common. If I can do something to help others going through similar circumstances, or to educate and advocate for epilepsy awareness, it would be my honor.

Annmarie Fanning

Annmarie Fanning is a loving wife to Mike and mother of their handsome son, Logan. They reside in a small Indiana city, about an hour outside of Chicago. She has her Master’s degree in Business Administration with a Healthcare Concentration from Davenport University and her Bachelor’s degree from Purdue University in Behavioral Sciences. She has worked 25+ years in a healthcare field with the majority of those years working for adults and children with developmental disabilities, many of whom suffered in one way or another with a form of epilepsy.

The Fanning’s son, Logan experienced his first seizure when he was 18 months of age, in 2008. Since then, Logan has been on numerous trials of different medications. He has been in and out of hospitals, ERs, laboratories, doctor offices and EEG clinics. Logan is diagnosed with Autism and Intractable Epilepsy, a seizure disorder in which a patient’s seizures fail to come under control with treatment.

In 2012, Logan had his first Vagus Nerve Stimulator (VNS) implant. 2014, Logan underwent two laser brain ablation surgeries, with the hopes to minimize the number of active seizures. 2016, Logan had surgery to replace the battery in his VNS. I have created a Facebook page, “Logan’s Link” for our son that mentions some of his daily struggles and experiences in his life with epilepsy.

Our family is an Epilepsy Warrior Family. It is my goal to be able to help others going through similar circumstances as we have. I want to increase awareness of epilepsy and SUDEP. It is an honor to be on the Board of The Epilepsy Warriors Foundation, and be able to assist and advocate for epilepsy awareness!

Brian Schultz

I live with my family in the greater Houston area. I have experience being on the receiving end of bad news when my doctor informed me over six years ago that I have a deadly form of cancer. Initially, the fight was very hard. But I am very fortunate and thankful to have access to some great institutions at the Texas Medical Center. Through their expertise and my wife’s and my attention to carry out their instructions, I have been cancer free for most of those years now. But I also understand that not everyone has access to these types of resources.

I have known Susan for many years now. What has inspired me over the years is watching Susan fight for the children with epilepsy and special needs including those in her own family. Her drive and determination to help other families has grown into this organization whose goal is to help families directly with education and resources.

One of those families the Epilepsy Warriors have helped is my nephew Raymond. His wife Chavita suffers from epilepsy and has seizures quite often. They are now in the process of training their German Shepard to recognize when a seizure is coming and this incredible animal will be her guardian for the upcoming years. He will even know what to do when a seizure happens. When I emailed Susan about Chavita she quickly contacted them and got them involved with the Epilepsy Warriors. They now have access to many resources, doctors, and education. You can see Chavita’s story by clicking on the Ambassador Families tab on this website.

I am honored to be on the Board of this organization. Our goal will be to ensure that anyone who seeks help with this disease has the same access that has already been afforded to others and to someday find a cure.

Lisa Weiss