Susan-BioSusan J. Noble – Founder/President

As President and Founder of the Epilepsy Warriors, I, Susan Noble, am striving to reach as many people within all communities to help educate and bring an end to the stigma of epilepsy. It takes teamwork. It involves supporting each other in all efforts. It means showing the world that epilepsy is so worth researching, fighting for, and funding. We are all fighting for a CURE for our children and those “Living with Epilepsy” every day.

We are a new foundation one with a passionate vision. This vision will light our path, and guide us towards our goals of “enlightening, empowering and curing. 100% of the Funds raised by our foundation will go to those families in the communities that are in need of our help to assist them with the daily living expenses and management of this disease.

The goal is to provide a level of support and services to family’s communities at large.

Bisa PetersonBisa Peterson

Bisa Peterson is the founder and Chief Executive Officer of Microton Incorporated. She is a native of Eufaula, Alabama. Born March 22, 1993. She was quite an exceptional child, with knowledge in multiple forms of code and software by age eight and versed in three languages at the age of 12. Ms. Peterson studied diligently throughout her young years immersing herself in scientific research. She is a very diverse person avid about foreign cultures, history, and operatic music. Ms. Peterson is a very learned person due to exceptional teachers, her science teacher Mrs. Manderson in elementary school. Her history professor Mr. Culberson in middle-school. As well as her Spanish tutor who wishes to remain (anonymous). After the 7th grade, Bisa became homeschooled through the Community Fellowship School in Opelika, AL. By Ms. Evergreen Freeman and her mother Mrs. Delores Peterson who laid down the path of her foundation in academia.

In the summer of 2009 she began researching a way to bring everything learned over the course of her life into a coalition for the betterment and innovation of the scientific community. After two years of arduous work she graduated with a 4.9 GPA at seventeen, her homeschool proposed that she was ready for college. It was from this point on that Ms., Peterson began to pile her achievements in hopes of making a good impression on superiors. Thus proving that in spite of her age, she was ready to start work and college. Bisa would go on to major in physics and mechanical engineering at the University of Southern Mississippi.

After an email to a company (Noetic Technologies). Bisa was contracted to design thirty-six technologies for the polymer science company. She moved to Hattiesburg, Mississippi in hopes to start her technology company once she completed the work for Noetic Technologies. The partnership turned out to be detrimental, due to Noetic Technologies insisting on giving credit to people who never taught Bisa. As well as, the diagnosis of epilepsy and an unfortunate fall that caused memory loss up to 45%. During this time, Bisa was designing the first curved bullet, based on an idea at the age of 12.

However, for a few weeks everything went well, and she had the opportunity to research alongside a leading scientist at the NASA. She returned to Southern Mississippi the following year to continue her studies, Ms. Peterson also worked under the guidance of the Chairman of the Physics Department Khin Maung to help her graduate early and design technology in her name. She continued her work at NASA as an intern and relinquished all ties with Noetic Technologies.

Ms. Peterson designed several defense concept technologies between the years 2012-2013 at the University. Her friend Walter Eskridge, created her technology on AutoCAD and she worked with Lawrence Mack to establish a private club on campus to brainstorm innovative ideas to help solve world problems. During her time in Mississippi, she worked with Sgt. Hoover to develop her technology for defense purposes. Shortly, afterwards she was injured and began to suffer from severe seizures, partial paralysis, and migraines. Bisa battled the very worse of this disease, and she made a full recovery finally in 2016. With the help of herbal teas, Vimpat, and rapid exercise as well as a healthy diet and support system. Additionally, she worked with a Master-Guns man to begin building the weapons for defense applications. Year 2014 shw designed her curve bullet and shortly after she started working on a sonic device for the USDA and Jager Pro to eradicate feral hogs.

After, a disagreement with a private company, Bisa decided to start a business. Ms. Peterson decided to seek advisement from startup incubator (Techstars) in London and the Roundhouse in Opelika, AL. Now she has a startup with her co-founder, and they are leading a diverse team and she is determined to make her mark in the world, Bisa focused on solving problems for the military sector, but she realized the actual problems were in everyday life. She thought of famine, disease, crop growth, polluted waters, and illnesses that plagued the world. For her, that was a realization, it is better to solve problems to avoid conflict then to add to conflict by making things to cause even greater harm to the world. For these reasons she has chosen to start a diverse and innovative biotechnology focused company.

“I gave myself a new mission in life, to prove that the impossible can be made possible with determination and support.”-Bisa Peterson

Georgean Hillyer

Georgean Hillyer, Is a wife to Patrick Hillyer and the mother of 6 beautiful children, Christopher, Joseph, Jessica, Aaliyah, Joshua, and Alexandrea. Their lives were changed forever when their fourth child had her first seizure at three months old.

She was in and out of the hospital every month; no one knew what exactly was causing her seizures and the doctors ordered many tests and tried many medicines. Aaliyah has as sequence alteration in the ATP1A2 gene. This gene encodes a subunit of the sodium/potassium ATPase channel, a channel that coordinates influx and efflux of sodium and potassium ions for an individual neuron, making it more or less capable of firing. A mutation in this gene is best known for causing familial hemiplegic migraine type 2. However, there have also been reports of children with severe epilepsy due to mutations in this gene.

At 18 months old she was in the hospital for a month and a half. She was put in a drug Induced coma to stop seizure activity when she finally awoke; they received news that paralysis affected her left side. Being told their Daughter would never walk, talk, or frankly do anything was news that is so difficult to hear

Aaliyah entered the early intervention program, and she had developmental, speech, occupational, and physical therapy. As a family, we were not going to give up on her, and she was very determined, she was sitting up, crawling, and eating in a few months and was walking and saying at least ten words by the time she was three. Her determination also played an important role in my life. I decided to go back to school and become an Illinois credentialed developmental therapist. I needed to know how to help her and what her rights were, and I felt I needed to help d guide other parents and their families.

Unfortunately, Aaliyah had another episode in July of 2011, she again was put in a drug-induced coma and woke up paralyzed on the right side. So, we had to start over with all therapies to get her to walk, talk, and eat again. She is still very determined, but it has been hard. We have had to fight to keep her therapies; we have to prove that she is still improving.

Our insurance doesn’t believe nutrition is essential. As part of the Epilepsy Warriors Foundations board, It is my goal to help as many families as I can, I want them to know they are their child’s best advocate, and they are not alone. I want to inform corporations, insurance companies, and others that there is so much more to epilepsy than just a seizure or two it can change a family’s life more than they can imagine. I look forward to serving and putting the interests of our kids first and spreading awareness about how important this cause is.

Annmarie Fanning

Annmarie Fanning is a loving wife to Mike and mother of their handsome son, Logan. They reside in a small Indiana city, about an hour outside of Chicago. She has her Master’s degree in Business Administration with a Healthcare Concentration from Davenport University and her Bachelor’s degree from Purdue University in Behavioral Sciences. She has worked 25+ years in a healthcare field with the majority of those years working for adults and children with developmental disabilities, many of whom suffered in one way or another with a form of epilepsy.

The Fanning’s son, Logan experienced his first seizure when he was 18 months of age, in 2008. Since then, Logan has been on numerous trials of different medications. He has been in and out of hospitals, ERs, laboratories, doctor offices and EEG clinics. Logan is diagnosed with Autism and Intractable Epilepsy, a seizure disorder in which a patient’s seizures fail to come under control with treatment.

In 2012, Logan had his first Vagus Nerve Stimulator (VNS) implant. 2014, Logan underwent two laser brain ablation surgeries, with the hopes to minimize the number of active seizures. 2016, Logan had surgery to replace the battery in his VNS. I have created a Facebook page, “Logan’s Link” for our son that mentions some of his daily struggles and experiences in his life with epilepsy.

Our family is an Epilepsy Warrior Family. It is my goal to be able to help others going through similar circumstances as we have. I want to increase awareness of epilepsy and SUDEP. It is an honor to be on the Board of The Epilepsy Warriors Foundation, and be able to assist and advocate for epilepsy awareness!

Matthew Karastamatis

Matthew Karastamatis was born and raised in Fort Myers, FL. He graduated from Florida Gulf Coast University in 2014 with a bachelor’s degree in Hospitality Management. He is an avid sports fan and very active in his community. He enjoys playing golf, playing and watching baseball, and spending time with friends and family. Matthew has volunteered for numerous organizations over the years and truly loves giving back. He currently works as a server and fishmonger at The Prawnbroker Restaurant and Fish Market in Fort Myers, FL. But, his true passion and day job is custom apparel. He is the sales manager at WearTheFund Giveback Apparel. They specialize in screen-printing, embroidery, promotional products, and graphic design. With every sale WearTheFund gives 5% back to one or all of it’s 50 charitable partners.

The Epilepsy Warriors Foundation is partnered with WearTheFund and has a special place in Matt’s heart. His girlfriend, Christina Beck, suffers from the terrible disease. Matt has seen the damage this terrible disease can do and is passionate about giving back and being able to help anyone who suffers from Epilepsy and their families through his work.

Natalie Boehm

Natalie Boehm is the founder of the support group Defeating Epilepsy and an advocate in the epilepsy community. Diagnosed with epilepsy at the age of two, Natalie struggled with challenges due to the side effects of her medications and lack of control of her seizures. Despite her challenges, Natalie would not allow epilepsy to get in the way of her life. She fought to find good medical care to help her achieve her goals. After finding a good neurologist, Natalie was able to put her goals into play and become seizure free. Through medication, exercise, nutrition, and holistic care, Natalie has now been seizure free since February of 2004. Her goal is to help those in the community find the resources necessary to live a happy and healthy life, despite having epilepsy. You can follow Defeating Epilepsy on Facebook as well as on Twitter to see the work Natalie and others are doing to spread epilepsy awareness.

Brian Schultz

I live with my family in the greater Houston area. I have experience being on the receiving end of bad news when my doctor informed me over six years ago that I have a deadly form of cancer. Initially, the fight was very hard. But I am very fortunate and thankful to have access to some great institutions at the Texas Medical Center. Through their expertise and my wife’s and my attention to carry out their instructions, I have been cancer free for most of those years now. But I also understand that not everyone has access to these types of resources.

I have known Susan for many years now. What has inspired me over the years is watching Susan fight for the children with epilepsy and special needs including those in her own family. Her drive and determination to help other families has grown into this organization whose goal is to help families directly with education and resources.

One of those families the Epilepsy Warriors have helped is my nephew Raymond. His wife Chavita suffers from epilepsy and has seizures quite often. They are now in the process of training their German Shepard to recognize when a seizure is coming and this incredible animal will be her guardian for the upcoming years. He will even know what to do when a seizure happens. When I emailed Susan about Chavita she quickly contacted them and got them involved with the Epilepsy Warriors. They now have access to many resources, doctors, and education. You can see Chavita’s story by clicking on the Ambassador Families tab on this website.

I am honored to be on the Board of this organization. Our goal will be to ensure that anyone who seeks help with this disease has the same access that has already been afforded to others and to someday find a cure.