Who We Are

Parents, Caregivers of Children, Teens, Young Adults, Adults whom suffer from Seizures, have been diagnosed with Epilepsy, Dravets Syndrome, LGS so that we can spread awareness and TALK ABOUT EPILEPSY and bring an end to this horrible infliction that affects all of us.

We are a new Foundation with a substantial mission, indeed. With your help, however, we can work together to address the ever-growing needs for advocacy and research as well as lift the societal burdens and physical limitations brought about by Epilepsy.

All  money that is raised for and by The Epilepsy Warriors Foundation through fundraising or donations will be staying in the local communities as to where the Fundraising takes place. We are registered in the state of Florida, Chicago and Texas so any event we fund raise for in these states will stay in that community.

The Benefits of Working and Partnering With Us

Should you know of any Corporations/Businesses that may be interested in partnering with us in the form of sponsorship here are  the “Benefits of Partnering with the Epilepsy Warriors:”

• We work through you. You stay in control of your client relationships; we’re here to help serve your clients’ charitable giving needs.

• We help you build stronger relationships. Your Clients, Customers and Employees will appreciate the charitable impact and tax advantages you help them achieve by working with us.

• We help you connect across generations. When you help families for example, you begin an ongoing process of involvement with current and future generations.

• We partner with you. We provide support, information, and expertise around charitable giving options.

• We utilize social media to connect with parents, families, caregivers, companies we can spread awareness about the research being done and why it’s so gravely needed and important to support and fund.

•  We establish and create a cause related marketing campaign that would not only benefit your company but the Foundation as well.

•  With your company  contributing goods and services in the form of some type of sponsorship capacity for events we hold i.e.; walks Fundraisers we as a Foundation would, in return, promote your company and their desire to improve the life of children and families with epilepsy .

Giving back to the Community is important to me both here in Florida where I reside and also in Chicago where I was raised as well as in Texas where I have been able to connect with some of the best in the Medical District of Houston.

Funds raised by our Foundation will go towards Epilepsy Resource Centers in our local communities and other areas where there is the greatest need for them.

Epilepsy Resource Centers: To build and or provide Epilepsy Resource Centers in the Florida, Chicago and Texas Markets.  Events activities that offer both support and help raise or spread awareness is what we as a foundation believe is beneficial to not only parents, caregivers and families but also the community. It is through a resource center that we can and hope to achieve a level of support and services offered to bring families and the community together.

Some of the most typical issues that would bring families or those with epilepsy to a resource center would include the following:

• Diagnosis of Seizures and Epilepsy
• Side effects of Epilepsy Medications
• School related issues including assistance with IEP’s and or 504 plans for children with special needs
• Social and behavioral issues

Transitional issues that our young people and teens often face with living with Epilepsy.

Epilepsy Family Support Groups: Parenting Children with Special Needs is a local support group started in the Fort Myers, FL community through my church connection group. It is a great opportunity for other parents and caregivers to come together and share similar experiences but also find comfort support and strength in those that truly do understand what they face and go through each day. To Register for this local community support group through Next Level Church go to this link: https://nlcrswfl.infellowship.com/GroupSearch

It also provides a level of support so that one can raise healthy and happy children and show that yes our children may have epilepsy or a special need but that does not define who they are. The support group is facilitated by Susan Noble Founder and President of the Epilepsy Warriors Foundation we are currently looking to have someone  get a group started in the Houston and local Texas Communities to further ensure that there is support for those that need especially in the lower income areas that may not have access otherwise.

To assist families in all communities in need of a service dog, Assist families in getting the necessary helmets needed for their children that are required to have one.

College Scholarships: Our goal is to in the future on a yearly basis  award one  or more well deserving high school graduate with epilepsy entering College studying in Neurology and Neurosciences.

Research: Our future goals are to have our Medical Advisory Board actively review research proposals in order to award grants to Neuroscientists at Northwestern Memorial, University of IL Comer Children’ Lee Memorial, Baylor University, University of Texas, Texas Children’s, all the institutions that are making phenomenal strides in the research of epilepsy.

Epilepsy Lectures: Getting together Doctors and Neuroscientists to discuss the latest in technology in the area of Epilepsy.  Epilepsy Workshops: We will help plan and support informative, educational workshops for parents, caregivers, teachers, school nurses, the medical community and those touched by epilepsy focusing on epilepsy management, identifying seizure activity, the effects of seizures on learning and cognitive development, safety protocol,  seizure medications and the side effects.

With Gratitude,

Susan J. Noble
Founder/President
The Epilepsy Warriors Foundation