August 2014 Featured Child

We have a very special child we are featuring this month James Fulkerson. James is our foundations “Face of Epilepsy” we chose to represent our Chicagoland families. On August 24th I am honored to give this little boy a Super Hero’s Birthday to help celebrate his 5th Birthday. James truly is a SUPER HERO! Please take a moment to read his journey it will move you and touch your hearts. I LOVE YOU SWEET JAMES. Thank you to Jeff and ...

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June 2014 Featured Child

Wyatt was diagnosed with Tuberous Sclerosis Complex. He was then diagnosed with complex partial seizures and a month later infantile spasms. Our Wyatt is a fighter. He has been through a lot in the last 9 months.  Our family does everything we can do to raise awareness for epilepsy and TSC. We hope to find a cure one day! No matter where life takes us we are a team, a strong team of family and friends who will always be ...

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May 2014 Featured Child

Blake was born in 2002 and was a happy-go-lucky kiddo with a great personality and just always went with the flow. He went deaf around 18 months old because of some fluid build-up in his ears, he learned lots of sign language since he could no longer talk. Blake had surgery for tubes around the age of 3 and started making sounds again and learned how to talk fairly quick but was reading within 7 months and progressed above average ...

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April 2014 Featured Child

Noah is a four-year-old from Plainfield and the son of Ryan and Jennifer Galloy. Noah is fighting a rare bacterial infection called, Atypical Mycobacterium Avium Complex (MAC). His body is plagued with such a rare disease due to the even more rare Immune Deficiency (IL-12 Beta 1 Receptor) he was born with. Noah is one of eight in the world with this bacterial infection and one of three in the US with the Immune Deficiency. His older brother, Brayden, is ...

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March 2014 Featured Child

Michael Stephens was born March 3, 2006 in Thomasville, Georgia as the little brother to Angel Stephens. He absolutely loves his Sister (Sissy). He has been a joy since he was born. At the age of six months he was diagnosed with severe asthma where he was treated at Shands Hospital in Gainesville, Florida. He was diagnosed with moderate to severe Autism in August of 2008. At that time Michael began aggressive therapies to give him a chance at an ...

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February 2014 Featured Child

Our sweet 5 year old, Greyson, was born a perfect 7 pounds and 10 ounces. We felt so blessed to have a healthy baby. That is, until 3 months of age, when he started to develop infantile spasms. Infantile spasms are a devastating type of seizure that can drastically harm brain function and are heart-wrenching to watch. After a myriad of diagnostic testing, including MRIs, EEGs, kidney ultrasound, vision exams, chest x-rays, and multiple blood draws, it was determined that ...

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January 2014 Featured Child

Happy New Year from the Epilepsy Warriors Foundation! I would like to say thank you to all the families that gave me the privilege of featuring their children. Sharing the stories of your children this past year helped many families, people to see that each child with epilepsy has a story to tell. To show that epilepsy is different for each one of us and that no matter what the diagnosis of epilepsy our children have been given it does ...

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December 2013 Featured Child

Peyton was born a beautiful, healthy 6 pounds on July 2, 2010. It didn’t take long for us to begin to realize our princess was having feeding issues and wasn’t hitting any of her milestones. At 8 months she was diagnosed with failure to thrive and that began our journey. Two years and 13 specialists later, Peyton was diagnosed with mitochondrial disease. Along with her feeding issues, Peyton suffers from seizures, severe muscle pain, hypotonia, trunk weakness, encephalopathy, ptosis, chronic ...

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November 2013 Featured Child

My Warrior Princess…..Tori

I never knew a child could teach an adult so much….until I had Tori.  Tori’s journey began on December 20, 2006 her birthday.  She came into this world fighting after she aspirated meconium at birth and could not breathe.   During this time Tori coded and then when she was revived, only had 7% oxygen saturation for an hour. She fought for her life and survived getting placed on a life support system called ECMO.  We were told that ...

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October 2013 Featured Child

Patrick is one of the most funny, loving, independent, energetic and endearing four-year-old boys that I know. He loves a thrill, has a mischievous smile and is happiest when he is running wild. When Patrick was an infant and toddler he had febrile seizures. It was stressful but we did not think too much of it because it does run in my family. Patrick had his first non-febrile seizure nine months ago, one month before turning four.

Looking back, it appeared ...

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