It started Friday, August 4th. His dad was watching him so when I picked him up he had a scraped knee. I didn’t think anything of it, he’s 5! I asked him about it, he said he fell not a big deal I thought. He was acting different that day, he wasn’t interested in swimming [...]

Gabby was born June 27, 2008. She seemed like a typical infant to everyone but me. I had a strong feeling there was something not “wrong” with her but different. We didn’t realize her screaming for hours at a time and not keeping her milk in was because she was allergic to milk and soy. [...]

My name is Angela and my son, Stryder, has been fighting epilepsy for several years. He is five now and his seizures are not controlled. Stryder’ epilepsy has affected every area of his life and yet he is always smiling. Stryder has been the Rochester Ronald McDonald Ambassador for their season of giving in 2011 [...]

Meet a true warrior. Giovanni Giordan. Gio has been seizing since birth but his parents, Charlotte & Ron, thought he was just having night terrors when they heard him through the baby monitor every night crying out. Then, he had one of the episodes while he was wide awake. Gio was diagnosed with epilepsy and [...]

Riley is 8years old, he was born in March 2004, a healthy lad. Though he had a seizure in October of that year, due to a raised temperature and spent the weekend at the local hospital. Prognosis was febrile seizures and as we recovered we went home. A few weeks later I was on Nightshifts [...]

Our sweet little Jazlyn Eva was born on December 7, 2009 the day of mommy’s grad finals. Since then we knew she would be the one to challenge us yet make us strong. It was not until a few weeks later when our family realized there was something bothering Jazlyn. I kept asking advice from [...]

Evan Moss is extraordinary nine-year-old who has already published his first book, My Seizure Dog, and in the process has raised awareness for epilepsy and tuberous sclerosis complex (TSC) .Evan was born with TSC, a genetic condition that causes tumors to grow in vital organs. TSC is also the leading known genetic cause for epilepsy [...]

Cole Michael Rapini was born on March 18, 2008, and despite being 5 weeks early he was deemed totally healthy by Doctors, a term we have not heard used to describe Cole since that day. Shortly after we brought Cole home from the hospital his health began to deteriorate. His first year of life seemed [...]

Joscelyn Dempsey is the daughter of Michael and Jennifer Dempsey of Mount Dora, Florida. Joscelyn suffered her first seizure at two months of age. Her mother Jennifer took her to the emergency room and they transferred her to another hospital for testing and treatment. An EEG test was performed but revealed nothing unusual. Since Joscelyn [...]